Solving Kids’ Cancer is a registered charity in England and Wales (charity number 1135601). We exist to support children and families affected by neuroblastoma in every way we can. Practically, this means:
• Providing a range of parent support services based around ensuring key information is available in accessible forms.
• Running dedicated groups and events which help families forge links with clinicians and other families within the neuroblastoma community.
• Funding research which will improve the understanding and clinical treatment of neuroblastoma.
• Fundraising for any children who are ineligible for clinical trials in the UK, or whose best treatment path is outside of the UK.
Our charitable objectives, as set out in our Articles of Association, are:
1. To advance the understanding and treatment of cancer in children through the greater awareness, provision of equipment, access to treatment protocols in hospitals and medical centres and clinical research aimed at improved diagnosis and treatment anywhere in the world; and
2. To advance the education, relieve the sickness and poverty of persons living anywhere in the world through the provision of equipment, financial assistance and by any other charitable means that the directors in their absolute discretion think fit.
Everything we do must be in furtherance of our charitable objectives.
Solving Kids’ Cancer is also registered as a company limited by guarantee. We are therefore regulated by both the Charity Commission and by Companies House. We are required to submit a trustees report and accounts to the Charity Commission and Companies House annually. You can access the latest report and accounts here: http://www.charitycommission.gov.uk/find-charities/
Solving Kids’ Cancer will consider funding all types of research into neuroblastoma. We do, however, focus on bringing new trials to the clinic in the UK. One of our aims is to help provide treatment or trial opportunities to those children who have exhausted current treatment pathways and have no further options. While wishing to bring new and exciting trials to the clinic, originating in the UK or abroad, we encourage trials that have a low toxicity. Solving Kids’ Cancer Europe works closely with the American charity Solving Kids Cancer who have kindly allowed us to use their international scientific advisory board for assessing UK based research proposals. SKC is a founding member of the International Neuroblastoma Research Collaborative, (INBRACED, together with J-A-C-K and Solving Kids Cancer in the USA) which aims to collaborate with research foundations around the world to bring the best and latest treatments and trials to children everywhere. We believe that through this collaborative we will enable more children to access the very best trials without delay, regardless of geographical location. We believe that the increased international collaboration generated by this initiative will be of benefit to researchers, clinicians and families worldwide.
Families need access to support and information through their journeys as they are met with having to make unexpected hard decisions and choices for their child’s treatment. Many families are used to being told what the next step is. When given options many families are confused and feel the need to understand their child’s condition at a level that they normally would not have the need to. A full time member of staff, our regional co-ordinator, is available to meet with.
As part of our ‘Parent Support Services’, we ensure that our families have access to the most current information on neuroblastoma. To help them with requested information to base their decision for what is best for their child on. Our education activities include parent literature, handbooks and conferences for them to hear from each other and talk directly with international experts in neuroblastoma.
Solving Kids’ Cancer runs an annual fun day for parents and children once a year. There is also an annual conference to bring together clinical experts on neuroblastoma with parents. A parents’ support group is available to all parents and organised by the regional co-ordinator.
Yes. We work with parents and support you to fundraise in the most effective way possible. Our dedicated full-time fundraising team will give you and people in your fundraising community professional fundraising support, guidance and resources to help you meet an ambitious fundraising target. However, please note that our fundraising team is small to keep costs down.
Our fundraising activities include:
• Setting up a fundraising page on our website
• Setting up a fundraising page for your child’s appeal on Just Giving
• We will set up a ‘text to give’ code
• Designing and producing posters, leaflets and sponsorship forms to help maximise fundraising
• Providing PR guidance and support for dealing with the media
• Providing collection boxes, stickers, t-shirts and running vests, wristbands and balloons to your fundraisers
• Providing special items if needed, such as appeal banners and other materials
In return, we ask that you comply with the following requirements:
1. That we be set up as the administrator on your fundraising Facebook page to ensure content is cohesive with our charitable objects see Q1 What is Solving Kids’ Cancer and what does it do?
2. Each fundraising appeal must be compliant with our ‘Parents’ Guide to Branding’ document, a copy of which will be sent to you.
3. You must not initiate your own web pages without our prior written approval.
4. Any parent blog you wish to write must be hosted on our website.
If you get your friends, family and community to help you, plan and carry out your fundraising activities in an organised and proactive way with the support of Solving Kids’ Cancer team, you are likely to achieve your target.
We have a Communications Coordinator who can help and support you when dealing with the media. You may prefer not to be involved with the media, but it is likely that they will contact you when they hear about your child’s situation and the progression of their appeal with us. It is important that you are prepared for this, and that you get the advice and support you need to deal with the situation.
In our experience, the most successful fundraising campaigns are the ones that involve your local media and achieve maximum publicity. This is likely to have a big impact on you and your family’s life which is why we offer all families PR support to help manage.
Unlike SKC, JustGiving is a for-profit business and charges fees to donors and charities. It deducts its fees directly from donations made using credit/debit card fees, and as well as for processing Gift Aid claims. It also charges Solving Kids’ Cancer a fee each month for collecting money on our behalf. Other sites, such as Virgin Money Giving, also incur fees.
We want to ensure that as much as money as possible that is raised goes towards supporting families affected by neuroblastoma. We therefore ask that all fundraising is now hosted on our website.
Gift Aid is a simple way to increase the value of your donation to Solving Kids’ Cancer – at no extra cost to you. Subject to Q9 below, if you pay tax in the UK, SKC can reclaim the basic rate tax (25%) on your donation. So, if you donate £100, it is worth £125 to SKC.
Your donation will qualify for Gift Aid if you pay tax in the UK, are not “connected” to the child or his/her parents and have signed the Gift Aid declaration. Every £1 that you donate with Gift Aid is worth £1.25 to Solving Kids’ Cancer at no extra cost to you.
HMRC rules say that Gift Aid is denied on donations where the donor, or a person connected to the donor, receives a benefit as a consequence of the donation. If you are a friend or a colleague of the child or his/her parents, then you can donate under Gift Aid without a problem. However, if you a relative, you may be deemed “connected” to the child or his/her parents and your donation will not qualify for Gift Aid.
My child has neuroblastoma and I want raise money to help him/her. What do I need to do get started?
First of all, get in touch with our Fundraising team so we can whether you should proceed with a Solving Kids’ Cancer fundraising Appeal or Journey.
An Appeal is for families who know which treatments they need and how much they need to fundraise.
An Appeal is when you have identified a treatment path for your child at a registered hospital outside the UK and want to raise money for Solving Kids’ Cancer so that we can help pay for those costs and associated costs such as travel and accommodation for you and your family. The treatments are very expensive but our Appeals are aimed at raising funds to ensure that the cost does not act as a barrier. The Appeal will almost always be time limited and have a fixed fundraising target. The time limit will almost always be because your child needs treatment by a certain date, but it also serves as a visible impetus to donors. The fundraising target will be representative of the cost of your chosen treatment path and associated costs.
A Journey is suitable where your child may need access to expensive treatment in the future.
This may because your child is early into his/her treatment path in the UK, or where your child has had neuroblastoma and is in remission. Given the aggressive nature of neuroblastoma, we understand a number of parents will wish to fundraise ‘just in case’ of a relapse, in case further treatment is needed at a future date. No less priority is placed on Journeys than Appeals, but due to the nature of Journeys they are not time limited in the same way as Appeals (though we do impose a 5-year time limit see Q28. What happens if my child relapses after those five years have passed and we need more money to pay for treatment?
Nor do Journeys have a formal target figure. This approach aims to keep your child in the public consciousness, allow for ongoing fundraising and raise awareness about neuroblastoma.
All the money raised through the fundraising Appeal or Journey is irrevocable and is paid into Solving Kids’ Cancer’s general funds to be used to further our general charitable purposes, see What is SKC and what does it do?
We spend up to 7% of that money to pay for our administrative costs. Please see Q20 below for more on this, Q20. How much money does Solving Kids’ Cancer spend on admin?
It is ultimately the decision of our trustees, who have overall legal responsibility for SKC, as to how the funds will be used. However, to date the trustees have always designated approximately 93% of the funds raised to help parents fund their child’s overseas treatment costs and other associated costs in the case of an Appeal or, in the case of a Journey, to help them in case they need to pay future treatment costs. Nonetheless, it is important to note that the monies are held for the general purposes of the charity and the trustees have absolute discretion in respect of their use.
Designated funds are part of the general funds of the charity which the trustees have earmarked for a particular project or use, without restricting or committing the funds legally. The funds may be undesignated if the trustees decide in their absolute discretion that it would not be in the charity’s best interests to proceed or continue with the use or project for which the funds were designated.
Before we can help you start fundraising, we will need the parent(s)/guardian(s) of the child to agree and sign up to our Appeal and Journey terms and conditions, a copy of which will be sent to you, which set out what happens to the funds raised and how they may be used.
As Solving Kids’ Cancer is a registered charity, the advantage of making donations direct to us is that, in most cases, the donation will qualify for Gift Aid, thereby increasing the value of the donation. For more information on Gift Aid, see Q8 and Q9 above Q8. What is Gift Aid? Q9. Do my donations qualify for Gift Aid?
By donating to SKC, you will also benefit from our fundraising support, guidance and resources.
As explained in detail at Q12 above 12. What happens to the money that is raised by an Appeal or a Journey?, the funds raised are held for SKC’s general purposes and the trustees have absolute discretion in respect of their use (though to date the trustees have designated most of the funds raised from an Appeal or Journey for that child’s use). It is a requirement of our Fundraising Terms and Conditions that you ensure all those fundraising for your child are aware that the funds raised are paid into SKC’s general fund to be used for general purposes.
If you or a donor wants absolute certainty that all funds raised will be used specifically for your child, then a donor should make a donation direct to you and/or you should set up a private family trust. However, please note that any donation to you or a private family trust will not qualify for Gift Aid.
We are only able to help you fund treatment where:
• Your NHS oncologist has approved a treatment path for your child outside the UK; and
• The agreed treatment is in a registered hospital (outside the UK) and is administered by an oncologist in the oncology department of that hospital.
We do not fund alternative therapies and treatments in clinics or private practices in the UK or overseas.
Can you help me find treatment outside the UK for my child and help arrange our travel and accommodation?
With the advice and agreement of your child’s NHS oncologist you will be responsible for choosing the appropriate treatment path for your child. However, we have established contacts with treating hospitals outside the UK (including in Germany and the USA) and can help you secure the best possible rates to keep your costs down.
We retain the services in the USA of a Medical Costs Adviser (MCA) who can negotiate directly with a hospital for fees charged. Significant savings have been achieved in the past but the service is expensive. The cost for is incorporated into the Appeal fundraising target. Although it is charged to Appeal funds raised it can represent a considerable net saving on treatment costs. We will let you know if we consider engaging an MCA may be beneficial, but we would always consult with you to get your agreement to this.
We also have established contacts with travel agents and carriers and can therefore help you secure the best possible rates to keep your travel costs down.
Arrangement can be made with hospitals for medium to long stay accommodation.
No. Our aim is to give you a financial grant to help you pay for the costs of the treatment you have chosen for your child. We will also work hard to negotiate fair treatment costs from all hospitals on your behalf.
However, we cannot sign any legal agreement with the treating hospital. You will be responsible for signing the agreement with the treating hospital and will therefore be liable for paying those costs and complying with any other terms of that agreement. It is important that you fully understand your liabilities before signing.
Unfortunately, we are also not in a position to be able to guarantee the payments to the hospital.
What if my child needs urgent treatment when he/she is at the treating hospital that isn’t already covered by the financial grant? Will you pay?
As outlined above, if you are at the treating hospital and it is decided then that urgent treatment is needed, it will be your responsibility to pay for the costs of that urgent treatment. On request, the trustees determine whether they can make a grant to you to help you pay for all or part of the urgent treatment costs. This will mostly depend on whether it is financially sustainable to Solving Kids’ Cancer to make a grant to you.
• For an Solving Kids’ Cancer Appeal, you will be responsible for talking with your child’s oncologist to let them know you are committed to exploring treatment options for your child abroad.
• With their advice and agreement, identify the appropriate treatment for your child. Ask your child’s oncologist to communicate with the relevant doctor abroad.
• Chase up both doctors and ensure the doctor abroad has all the notes, scans and medical information required. This is necessary so that the doctor abroad can give a second opinion and propose a treatment plan for your child.
• Contact us as soon as you have a treatment plan with costs. It is highly likely that we will negotiate on your behalf on costs with the hospital. For example, in Germany we have established discounts which we would seek to apply.
• We will then ask you to complete a SKC grant application for financial assistance should you require a grant to help you cover treatment, travel and accommodation costs. Either the CEO or Trustees will consider your grant application and decide whether or not to approve it.
• If your grant application is approved, we will ask to you read and sign our Fundraising and Grant Terms and Conditions which sets out our obligations to each other in relation to the Appeal and the grant we will make you. The Agreement makes clear that the funds raised by the Appeal will go into our general funds to be used for general purposes, and that we intend to make a grant to you to help you with your child’s treatment and associated costs.
• Upon receipt by us of the signed Terms and Conditions we will formally start the Appeal for your child and begin helping you fundraise, for example by creating fundraising materials. The Appeal will be hosted on the SKC website.
• With a set treatment path, a target figure will be established for your child’s Appeal. As Appeals are time limited will set a deadline by which the fundraising target must be met in order to ensure treatment for your child.
• Fundraising will begin towards reaching the Appeal target. We will do everything in our power to ensure that proper procedures are followed and that your fundraisers have all the information and equipment they require to make their events a success.
• We will contact you on a regular basis to ensure we have up to date information for our update to your Appeal information page, and any publications going forward.
• We will write to everyone who donates to the Appeal to say thank you.
• We will keep a proper, auditable record of all the funds received for each Appeal. We maintain a detailed income report so that you can keep tabs on all the money that has been received by SKC as part of the Appeal.
• Once the fundraising deadline has been reached and the target (hopefully) met, we will stop the Appeal. We will then pay the grant to you to cover the treatment and associated costs so that you can travel with your child for treatment.
• For a Solving Kids’ Cancer Journey, your child will either be in the early stages of treatment (in the UK) for neuroblastoma, or be in remission from neuroblastoma. Your aim will therefore to fundraise ‘just in case’ you need to pay expensive treatments costs at a later date.
• Once you have contacted us, we will ask you to complete a SKC grant application for financial assistance. Although you will have no treatment in mind for your child at this stage and therefore no specific costs you need to cover, we ask you to complete the application form so that we have your details on our system and can formalise the process to begin the SKC Journey for your child.
• We will ask to you read and sign our Journey Fundraising Terms and Conditions which sets out our obligations to each other in relation to the Journey and the funds we agree to designate for your child’s use. The Terms and Conditions make clear that the funds raised by the Journey will go into our general funds to be used for our general charitable purposes, but that we intend to designate funds for your child’s use should he/she require expensive treatment at a future date. The funds can be redesignated in the trustees’ absolute discretion – see Q12 for more information Q12. What happens to the money that is raised by an Appeal or a Journey?
• Upon receipt by us of the signed Terms and Conditions we will formally start the Journey for your child and begin helping you fundraise, for example by creating fundraising materials. The Journey will be hosted on the SKC website.
• Unlike the Appeal, the Journey will have no set deadline or specific target figure. It will be a continuous fundraising Journey.
• Fundraising will begin. We will do everything in our power to ensure that proper procedures are followed and that your fundraisers have all the information and equipment they require to make their events a success.
• We will contact you on a regular basis to ensure we have up to date information for our update to your Journey information page, and any publications going forward.
• We will write to everyone who donates to the Journey to say thank you.
In an ideal world, every pound raised would go towards your treatment. If you set up an Appeal with us, we will set your Appeal fundraising target higher than your treatment costs to cover the costs of travel, accommodation and running your appeal. The life cycle of each Appeal will be bespoke to each family and the treatment that each individual child may need. In order to meet our costs, on a typical Appeal/Journey, for every £1 raised we budget to spend and recover 7 pence to cover our administrative and fundraising costs.
We spend money on fundraising specifically in order to raise more money. We deliberately have a small but effective fundraising team to keep costs down to a minimum.
Are there any rules on what we can and cannot do in order to raise publicity about our Appeal or Journey?
Yes. If you have a fundraising Appeal or Journey with Solving Kids’ Cancer, you will need to comply with the Parents’ Guide to Branding, a copy of which will be sent to you.
Fundraising will often mobilise entire communities in an effort to make sure a child can get the treatment they need. Nevertheless, as a registered charity, we are under an obligation to remain politically neutral in all matters. We are also a non-sectarian organisation. This means that we do not take a stance on any religious issue. We therefore require you to be religiously neutral in all matters concerning SKC.
While charities can engage in political activity, there are very strict Charity Commission guidelines on how we can engage in political activity. As a general rule, we do not take a stance on political issues and cannot allow the use of our name or branding in any event or published material which attempts to advocate any political or religious agenda.
This is not to say we do not support fundraising by political or religious groups, but we must be satisfied that their message remains completely separate from ours in the public perception.
By having a fundraising Appeal or Journey with SKC, you agree that there will be no public expression of political views with any of your fundraising campaign media (for example, interviews for newspapers, radio, TV or on any social media platforms). You must ensure we are not held accountable for political views expressed before, during or after your Appeal or Journey with us.
If you wish to politically lobby for funding to pay for treatment abroad, you must first discuss this with us so that we can agree the actions you may take.
We do understand that you cannot control all expressions and actions by your fundraisers, but we ask you to take reasonable efforts to make sure that they are aware of and comply with our Parents’ Guide to Branding.
We also have guidance on how you may use our name and logo.
If you think that our name or branding is being misused in this respect or if you are concerned that your fundraising may breach the Parents’ Guide to Branding please contact a member of the SKC team.
Decisions on which events and publications we can support with our branding will be made on a case by case basis.
Yes, and we would actively support you in doing so to raise awareness about neuroblastoma. However, as a charity we must adhere to strict rules about what we can and cannot do, and so we must ask that any blogs be hosted on our website.
Why are the Fundraising and Grant Terms and Conditions so long and formal looking? I just want to raise money to help my child.
As we are a charity we must adhere to strict rules about how we handle and spend funds raised for Solving Kids’ Cancer. Our trustees have a legal duty to act in the best interests of SKC, and to protect SKC’s assets and resources to ensure they are only used to further SKC’s charitable objectives, see What is SKC and what does it do? This includes ensuring that funds are only spent for the purpose for which they were raised.
As high levels of money are being raised through the Appeals and Journeys (often hundreds of thousands of pounds for any one fundraising appeal), we need to provide maximum clarity to everyone involved (including donors and parents) about how the money raised will be used and that SKC has appropriate controls in place to ensure the money will be used for proper purposes.
The Fundraising and Grant Terms and Conditions therefore seem rather long and formal but we think that is necessary to ensure that clarity. The Terms and Conditions set out how SKC and parents will work together, that the money raised by an Appeal or Journey will be go into our general funds, how the money we designate for a child’s use can be used and what happens if the money is not used properly or there is money left over. Appeal or Journey Terms and Conditions will be sent to you as appropriate.
Please note that the funds can be redesignated – see Q12. What happens to the money that is raised by an Appeal or a Journey?
Occasionally, an Appeal faces a shortfall – where insufficient money has been raised to reach the Appeal fundraising target agreed by us in order to meet your treatment and associated costs.
As with all Appeals and Journeys, the funds raised will go towards Solving Kids’ Cancer’s general funds to be used for our general charitable purposes. However, where there is shortfall, the trustees will determine if SKC can make up that shortfall. This will usually depend on whether SKC has the necessary funds available at that time to make up the shortfall.
The funds of the charity will vary from month to month depending on the number of children we are helping at any one time. The trustees understand that it may be frustrating for you to wait for their approval, but are used to making quick decisions.
It may be the case that we cannot cover all the required treatment costs for your child if your Appeal faces a shortfall. As a result, your child may not be able to secure the treatment he/she needs. If this happens, SKC’s general purpose funds can be called upon but this is not always possible due to lack of funds. We will always be honest and open with you when it comes to the level of support we can commit to and as far in advance as possible if this eventuality becomes likely.
You should also note that regardless of the funds raised, they can be redesignated – see Q12 for more information on this.
What happens if we have raised money from the Journey but now need to spend it on treatment for my child?
In this situation, we would convert your Journey into an Appeal. If we need to raise more money to meet your child’s treatment costs and associated costs, we will agree an Appeal fundraising target and set a fundraising time limit. See Q12. What happens to the money raised from an Appeal or Journey? If the fundraising target is met, Solving Kids’ Cancer will make a grant to you from its general funds to cover the costs of your child’s treatment and associated costs.
Subject to our right to redesignate the funds at any time, Solving Kids’ Cancer sets a limit of five years for designating funds raised from an Appeal or Journey to a particular child.
After these five years have passed and any or all of those designated funds remain unused, the trustees have discretion to transfer them back to SKC’s general funds to be used to further our general charitable purposes, which may be to help another child or to fund research or education awareness activities.
What happens if my child relapses after those five years have passed and we need more money to pay for treatment?
If your child relapses after five years of our designating funds to you, and we have transferred those funds back to Solving Kids’ Cancer’s general funds, the trustees will examine the current level of general funds.
If it is in the best interests of SKC, the trustees may, in their absolute discretion, re-designate to your child all or part of the funds that were transferred back into general funds from the Journey or Appeal to help you pay for treatment. If the trustees decide not to re-designate those monies, we will discuss other options with you, which may include re-launching an Appeal.
Please see Q12. What happens to money that is raised by an Appeal or a Journey? We will discuss with you what you wish to do with this money, for example it may be appropriate to convert your Appeal into a Journey to save for any future treatment your child may need.
However, the trustees have absolute discretion as to how the monies will be used. If five years have lapsed since the money was designated to you, it will be at the trustees’ absolute discretion to transfer those funds into Solving Kids’ Cancer’s general funds to be used to help other families affected by neuroblastoma through our charitable activities.
For information on what happens if your child dies during an Appeal or Journey please see Q32. What happens if my child dies?
The trustees have a duty to act in the best interests of the charity and safeguard all the charity’s assets. Accordingly, the trustees may, at their discretion, decide to close an Appeal or a Journey, or suspend, withhold or order you to promptly repay a financial grant we have made to you if, for example:
• you do not comply with the Fundraising and Grant Terms and Conditions, which include not making any public expression of political or religious views, engaging in political lobbying which we have not agreed to, and material and serious non-compliance with the Parents’ Guide to Branding;
• you lower SKC’s name or reputation (or that of its trustees or staff);
• you do not use the grant we give you for the purposes it has been given i.e. to pay for treatment costs and other associated costs;
• you obtain duplicate funding from a third party;
• you obtain funding from a third party which, in our reasonable opinion, undertakes activities which may bring our reputation into disrepute or lower our reputation; or
• you provide us with any materially misleading or inaccurate information.
The trustees have a duty, in deciding whether to accept or refuse a particular donation, to consider which course will, taking an overall view, be in Solving Kids’ Cancer’s best interests.
There may be some circumstances where the trustees consider that donations from certain individuals or organisations would not be in SKC’s best interests because, for example, accepting the donation and being affiliated with that donor was likely to bring the charity into disrepute, or if the actions of the donor would lower or were likely to lower the charity’s reputation. In those circumstances, we would not accept those donations.
It is unavoidable that any discussion concerning neuroblastoma must also take place with consideration that your child may not survive.
In the unfortunate event that your child dies during an Appeal or Journey or after we made a financial grant to you, we would talk to you about the closure of the Appeal or Journey after a respectful period of time.
We would require repayment of any part of the financial grant that is unused. These will be paid into Solving Kids’ Cancer’s general funds to be used for our general charitable purposes.
We would, however, discuss with you the possible future use of those funds, which must be used to further SKC’s charitable objectives. For example, you might wish for those funds to go towards another child’s Appeal or Journey, or they could be used to further SKC’s education awareness or research activities. Please note, however, that our trustees have the final say on how the remaining funds should be used.
If appropriate we can also offer in memory fundraising. Please see Q35 below 35. Can you help with in memory fundraising if my child dies?
For more information on palliative care and difficult decisions surrounding this very sensitive subject we recommend you visit www.cncfhope.org and www.clicsargent.org. Although written for families in the USA, much of the information is relevant to all families affected by neuroblastoma.
If you cannot afford to meet the funeral costs yourself, you can apply to Solving Kids’ Cancer for a financial grant to cover all reasonable funeral expenses. Please ensure that you keep any receipts of expenses when applying for a grant for financial assistance.
Yes. A number of parents also continue to fundraise on behalf of other children with neuroblastoma in memory of their own child. This in not in any way an obligation and is separate to both the Appeal and Journey fundraising outlined above.
Many parents feel a strong sense of community and form bonds with other parents in a similar position. Should a child die, the in memory funds raised on his/her behalf will be paid into Solving Kids’ Cancer’s general funds to be used to further our general charitable objectives. They might be used to fund research or raise awareness about neuroblastoma.
Provided you give us your explicit consent, we will use the personal details we collect about you and your child, including details of your child’s medical condition(s), in order to process your grant application, make arrangements for your child’s treatment and associated travel, and fundraise for your child’s treatment.
In order to carry out this work, we may need to share this personal information with other organisations such as hospitals and travel agents, who may be located outside of Europe in countries such as the USA which may not ensure such a high level of protection for the personal information. We may also use this personal information to publicise our work more widely.
Please be assured that the personal information we collect about you and your child will be securely stored and used in accordance with the Data Protection Act 1998.
© 2015 SKC – Last updated: 2nd December 2015