Katie Rose’s Journey

Katie Rose is a fun-loving, quick-witted, brave little eight-year-old girl, who loves making slime, playing Minecraft on her Xbox and football with her sister Olivia. She’s the youngest of three girls, Olivia is 10 and big sister Grace is 16.

Katie Rose was diagnosed with stage four high-risk neuroblastoma in March 2018. She had developed a solid tumour in her abdomen.

Her future is uncertain. Her family hope Katie Rose will be in remission at the end of frontline treatment, but in 40-50% of children diagnosed with high-risk neuroblastoma, the cancer comes back. Once it does the chances of long-term survival drop to less than 10%.

It means that Katie Rose’s family are raising funds in case she needs to access treatment not available on the NHS to either try to keep the cancer from returning or clear the disease if her treatment plan, unfortunately, doesn’t go to plan. This could cost hundreds of thousands of pounds.

Katie Rose’s story

In December 2017, Katie Rose began to feel unwell with a temperature and rash. Initially her GP thought it was scarlet fever. Soon after she had poor appetite, weight loss, lethargy, was pale and had begun to develop an ongoing limp in her left leg.

Due to her ongoing symptoms, the doctor requested an ultrasound of her left hip as well as her abdomen. Katie Rose then developed yellow bruising around her right eye.

“I just had a gut feeling something was not right,” says Una. “I had asked the doctor if anything more ‘sinister ‘ was going on but was told her symptoms were reactive of a severe infection as expected.”

But her abdomen ultrasound and physical examination revealed a possible 7cm solid mass and an MRI later showed a tumour in her abdomen. Katie Rose was then diagnosed as having stage 4 neuroblastoma with metastasis, a highly aggressive form of the childhood cancer.

“We will never forget the initial feelings of shock and disbelief that this was happening to our little girl who had already so much to deal with having been diagnosed with type 1 diabetes at five-years-old,” says Una.

“It has been complete devastation for our whole family, our lives changed forever that day,” says dad, Kevin.

Treatment

One week after her diagnosis, Katie Rose began her treatment plan. She completed eight induction rounds of chemotherapy and a further two rounds of TVD chemotherapy as scans showed she had partial clearance.

Katie Rose had her stem cells harvested, followed by surgery to remove the tumour. She has recently started high dose chemotherapy/stem cell transplant and is sadly experiencing mucositis – a very painful side effect. Once she has recovered in January 2019, she will have radiotherapy and then six months of immunotherapy.

“To date, Katie Rose has been incredibly brave throughout her treatment. She has shown ongoing resilience and her amazing wee spirit continues to shine through, even though she continues to endure so much gruelling treatment,” say Una and Kevin.

“We are so appreciative to all the consultants, doctors, nurses and the entire staff who are involved in Katie Rose’s care at the hospital, working so hard to get rid of this horrible disease.”

Katie Rose’s fundraising campaign

Katie Rose’s family hope she will be in remission at the end of frontline treatment, but in 40-50% of children diagnosed with high-risk neuroblastoma, the cancer comes back. Once it does the chances of long-term survival drop to less than 10%.

It means that Katie Rose’s family are raising funds in case she needs to access treatment not available on the NHS to either try to keep the cancer from returning or clear the disease if her treatment plan, unfortunately, doesn’t go to plan. This could cost hundreds of thousands of pounds.

How you can help

There are many ways you can help Katie Rose: by making a personal donation; holding a fundraising event; getting sponsored to take on a challenge.

Download our free Katie Rose resources (below) to support your fundraising.

Sponsorship Form

Campaign Poster

Event Poster

You can make a donation via this page, or if you’d prefer to text donate, text KRMC99 and your amount £1 – £10 to 70070.

If you’d like help supporting Katie Rose’s campaign, please get in touch with the fundraising team on 0207 284 0800 and fundraising@solvingkidscancer.org.uk

Terms and Conditions for Journeys

All donations are paid into Solving Kids’ Cancer’s (SKC) general funds to further its general charitable purposes. The funds raised by this Journey are not restricted for the child’s use. However, the trustees of SKC have agreed to designate 90% of funds raised by this Journey to help the child and their family pay for potential future treatment costs and all other associated costs including travel and accommodation. We will use the remaining 10% to pay for SKC’s administrative and fundraising costs.

If the child no longer needs the funds, or if the trustees decide, at their absolute discretion, that the funds should be used for a different purpose, they may redesignate all or part of the 90% for SKC general charitable purposes. We are very grateful for your charitable donation.

For further information about SKC and how we spend donations, please contact info@solvingkidscancer.org.uk

Solving Kids' Cancer Europe a registered charity no. 1135601 and registered company no. 7208648.

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