Has your child been affected by neuroblastoma? Call 020 7284 0800 for help and information.

Maya’s Urgent Appeal

£10,252 donated of £243,000 goal

Maya is a strong, stubborn girl, who knows what she wants and loves nothing more than playing with her baby dolls. She enjoys being outdoors and jumping on her trampoline. As the youngest child, she likes to boss her siblings around. Maya enjoys role-play like she’s the doctor and her grandad is the patient; she wants to become a paediatric doctor when she grows up.

But one day following a persistent temperature, difficulty walking and aches and pains around her hips, Maya was admitted to hospital. Ten weeks later the doctors diagnosed her condition as stage 4 high-risk neuroblastoma. She had a tumour in her left adrenal gland. She was just three years old.

High-risk neuroblastoma is the most aggressive form of this childhood cancer, affecting around 50 children each year. Maya’s future is uncertain – in almost 50% of children diagnosed with high-risk neuroblastoma, the cancer comes back. Once it does the chances of long-term survival drop to less than 10%.

Maya’s family desperately want her to access a clinical trial that could help keep her cancer away so they are urgently appealing for £243,000 by 14 February 2019.

Treatment                               

Over a 20-month period, Maya endured ten cycles of chemotherapy, stem cell harvest, surgery, stem cell transplant, high-dose chemotherapy, radiotherapy, differentiation therapy and immunotherapy. She also had countless injections, blood and platelet transfusions and general anaesthesia. She really went through the mill.

Maya’s mum, Dellanie, describes the time as ‘harrowing’. “As well as mucositis, Maya suffered from haemorrhaging, horrendous nosebleeds and VOD (veno-occlusive disease) of the liver,” says Dellanie. She and Terry suffered as parents too.

“We didn’t realise then how completely exhausted we were as parents. Just imagine the pain of watching your child go through this; putting on a brave face for your child when you don’t always feel that strong,” says Dellanie.

Fortunately, the family had great support. “We are forever indebted to all the wonderful people, and the excellent NHS team looking after our precious girl Maya,” says Dellanie.

Next steps

Maya has recently come to the end of her front-line treatment, and despite ‘hot spots’ evident on her October 2018 scans, doctors don’t think it is active disease. This means that there’s no further treatment planned in the UK.

Knowing how aggressive Maya’s cancer is “as oncology parents, we are not comfortable accepting a wait-and-see approach,” says Dellanie.

Maya’s family are hoping Maya can access the Bivalent Vaccine clinical trial at the Memorial Sloan Kettering Cancer Centre in New York, to try to increase the chances of the cancer staying away. This treatment is not available in the UK.

“We shall continue to fight. We are all warriors together to beat this childhood cancer that has started to rob Maya of her childhood during the past two years. We’ve got this, folks!”

Fundraising campaign

Maya’s family desperately want her to access a clinical trial that could help keep her cancer away so they are urgently appealing for funds. They need to raise £243,000 by 14 February 2019.

How you can help

There are many ways you can help Maya: by making a personal donation; holding a fundraising event; getting sponsored to take on a challenge.

Download our free Maya resources (below) to support your fundraising.

Sponsorship Form

Campaign Poster

Event Poster

You can make a donation via this page, or if you’d prefer to text donate, text MYNA99 and your amount £1-£10 to 70070.

If you’d like help support Maya’s campaign, please contact our fundraising team on 0207 284 0800 or fundraising@solvingkidscancer.org.uk.

“We are overwhelmed with gratitude to family, friends and the community, who continue to show their support and love for our family,” say Dellanie and Terry.

Terms and Conditions for Appeals

All donations are paid into Solving Kids’ Cancer’s (SKC) general funds to further its general charitable purposes. The funds raised by this Appeal are not restricted for the child’s use. However, the trustees of SKC have agreed to designate 90% of funds raised by this Appeal to help pay for treatment costs and all other associated costs including travel and accommodation. We will use the remaining 10% to pay for Solving Kids’ Cancer’s administrative and fundraising costs.

If: the child no longer needs the funds; the fundraising target is exceeded; insufficient funds are raised to fund the treatment; or if the trustees decide, at their absolute discretion, that the funds should be used for a different purpose, they may redesignate all or part of the 90% for SKC’s general charitable purposes. We are very grateful for your charitable donation.

For further information about SKC and how we spend donations, please contact info@solvingkidscancer.org.uk.

Solving Kids' Cancer Europe a registered charity no. 1135601 and registered company no. 7208648.

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