Before Millie- Rose was two years old, her parents’ were sitting in a doctor’s surgery at Alder Hey Children’s Hospital, reeling from the news that their daughter has neuroblastoma – an aggressive childhood cancer.
Millie’s chance of survival could be as low as 5%. That’s because even after successful treatment, four out of five children will relapse and there will be nothing more that doctors can do. If this happens, Millie’s parents know her only hope lies abroad where pioneering treatment in a select few US and European hospitals is saving children’s lives.
Facing a frightening and uncertain future, Millie Rose’s parents are determined to raise money for NCCA UK so that they can take Millie Rose abroad if they need to.
The NCCA UK is a charity that helps children access clinical treatment that is only available abroad, whilst also supporting research to bring new treatments to the UK.
“Millie is in serious trouble”, says her mother Lyndsay.
“This cancer is very hard to treat – we have to know she will get the treatment she needs, when and if the time comes and that’s why we’re fundraising with the NCCA UK.” Read Millie Rose’s story:-
Millie Rose is the youngest of three children.
By her first birthday her parents were worried about her constant stomach trouble, bugs and viruses. A few months later, Millie’s eyes became discoloured and she developed an unaccountable lump on her head.
By this time Millie’s frantic parents was visiting the doctor every week but antibiotics weren’t helping.
The next step was to take her to Alder Hey Children’s Hospital where their worst fears were confirmed – Millie had cancer and needed urgent tests to diagnose and treat it.
“Time seemed to stop”, said her mother Lyndsay.
“We were in so much shock I don’t think we even knew what the tests were for – we thought maybe it was to see if they’d made a mistake”
But tests showed Millie had neuroblastoma, a very aggressive and hard to treat cancer, and she was in the final stages. Millie immediately began a treatment programme with 80 days of chemotherapy.
Meanwhile her devastated parents began to research the disease, discovering how low their chances were of Millie’s recovery.
It was then that they realised that hope may run out for Millie in the UK, leaving them no option but to face treatment abroad and a bill of hundreds of thousands of pounds. Millie is currently undergoing a programme of treatment and her mother hopes friends, family, the local community and wider public will get behind Millie’s Journey.
“We’re fundraising for the NCCA UK because to date they have enabled 21 children to access the potentially life-saving clinical treatment they need abroad. They’re also funding ground-breaking neuroblastoma research so that one day children like Millie can be helped here. Please help Millie and others like her.”
Sadly Millie passed away on the 2nd July 2014 aged 3. Our thoughts are with her family at this difficult time.