Has your child been affected by neuroblastoma? Call 020 7284 0800 for help and information.

Rosie Veronica Mitchell’s Urgent Appeal

£158,542 donated of £222,000 goal

Seven-year-old Rosie is a chatty, cheeky princess – everyone who meets her immediately falls in love with her, and she also takes no nonsense, in the nicest possible way!

At the age of just 15 months, she was diagnosed with high-risk neuroblastoma when a tumour was discovered below her eye. She fought hard through 18 months of treatment which helped her recover and – despite lasting side-effects of hearing loss – for the next two and a half years she was able to enjoy life cancer-free with her friends and family.

But since then the disease has twice returned in Rosie’s bones, most recently in April 2018. In around 40-50% of children like Rosie the cancer comes back, and of those children, less than 1 in 10 will survive.

Rosie’s family began fundraising in case they needed to access further treatment or clinical trials not available through the NHS and with doctors concerned whether she can tolerate any more chemotherapy, they have decided together that Rosie’s best option is to access immunotherapy (hu3f8) in Barcelona – potentially life-saving treatment which needs to begin immediately.

They are appealing for your support to raise £222,000, to give Rosie the best chance of beating this horrible disease and getting back into remission.

Rosie’s story

Rosie has a large and loving family, with mum Donna-Louise, dad Ross, and eight-year-old twin brothers Lucas and Dylan – plus a whole extended family of granny, aunties, uncles, and cousins and close friends.

“Rosie looked like a little doll when she was born, hence her name, after the doll in the TV programme – Everything’s Rosie. It was hard at first having three kids under two but felt complete as a family. Rosie just fitted right in, always happy and content,” says Donna-Louise.

Just before Christmas when Rosie was 14 months old she got an ear infection which seemed to clear up with an antibiotic. But soon after her parents noticed a problem with her eye – after a few doctors’ visits then a trip to the local hospital scan results showed a mass in Rosie’s face.

Donna-Louise adds: “The minute we heard the word “mass” it felt like our whole world fell apart.”

Diagnosed with high-risk neuroblastoma

After many further tests and scans, Rosie was diagnosed with Stage 4 high-risk neuroblastoma and her parents were told that the cancer had spread to her abdomen, facial (skull area), lymph nodes, bones, and bone marrow. Treatment started immediately and for the next 15 months included chemotherapy, surgery to remove the primary tumour in her abdomen, high dose chemotherapy with stem cell transplant, radiotherapy and immunotherapy.

Despite suffering liver disease and a brain haemorrhage, and being left with high-frequency hearing loss as an after effect of treatment, Rosie fought on, recovered well and for the next two-and-a-half years was able to enjoy life again.

Relapsing

But in November 2016 a routine scan showed that Rosie’s cancer had returned in her bones and bone marrow, despite her showing no symptoms.  At this point, she was put on the Beacon trial and received 12 courses of chemotherapy plus a new treatment agent.

Another routine scan in April 2018 showed that the cancer was again back in her bones (and most probably bone marrow). Rosie received chemotherapy and her parents began researching clinical trial options in the UK and beyond.

Rosie currently has some disease still evident and doctors are concerned she will not be able to tolerate any more chemotherapy. Donna-Louise adds: “We’re at a crossroads in our journey and don’t know which way to turn.  I just want to just pick up my child and run, run, run – but Rosie’s such a fighter, so a choice we have none.”

“Rosie loves life so much and brings such joy and happiness to all who meet her. She has fought this horrible disease since she was a baby, but now we are running out of options. NHS staff are amazing but without more resources and research there is little they can do by way of a cure beyond trying early-stage clinical trials. We never wanted to be here but Rosie deserves the best shot we can give her. We need your support to make sure she has a chance of beating neuroblastoma.”

Rosie Veronica’s fundraising campaign

Rosie’s family are appealing for your support to raise £222,000 to access immunotherapy (hu3f8) in Barcelona, to give her the best chance of beating this horrible disease and getting back into remission.

Rosie will receive the first cycle of treatment in December 2018, followed by the second cycle in January 2019 and the third in February. Because of the urgency of treatment, the family will access the first two cycles of treatment with funds they have already raised with Solving Kids’ Cancer. They desperately need to raise the rest to pay for the remaining treatment.

How you can help

There are many ways you can help Rosie: by making a personal donation, holding a fundraising event, getting sponsored to take on a challenge, or simply following and sharing Rosie’s story through her Facebook page.

Download our free Rosie resources (below) to support your fundraising, and click here for even more resources, including fundraising ideas, templates and guidance.

Campaign Poster

Sponsorship Form

Event Poster

You can make a donation via this page, or if you’d prefer to text donate, text ROSM77 and your amount £1 – £10 to 70070. If you’d like help supporting Rosie’s campaign, please get in touch with the fundraising team on 0207 284 0800 and fundraising@solvingkidscancer.org.uk.

Terms and Conditions for Appeals

All donations are paid into Solving Kids’ Cancer’s (SKC) general funds to further its general charitable purposes. The funds raised by this Appeal are not restricted for the child’s use. However, the trustees of SKC have agreed to designate 90% of funds raised by this Appeal to help pay for treatment costs and all other associated costs including travel and accommodation. We will use the remaining 10% to pay for Solving Kids’ Cancer’s administrative and fundraising costs.

If: the child no longer needs the funds; the fundraising target is exceeded; insufficient funds are raised to fund the treatment; or if the trustees decide, at their absolute discretion, that the funds should be used for a different purpose, they may redesignate all or part of the 90% for SKC’s general charitable purposes. We are very grateful for your charitable donation.

For further information about SKC and how we spend donations, please contact info@solvingkidscancer.org.uk.

Solving Kids' Cancer Europe a registered charity no. 1135601 and registered company no. 7208648.

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