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Research

A new drug may overcome treatment resistance in neuroblastoma. Researchers at the Children’s Hospital of Philadelphia have identified a promising new drug against forms of neuroblastoma that have an ALK mutation. The ALK gene is mutated in around 10-15% of neuroblastoma tumours at diagnosis and significantly increased at relapse. This new drug (PF-06463922) has shown

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NICE Consultation

As you may already be aware the NICE (National Institute for Health and Care Excellence) recently published interim guidance that dinutuximab (Unituxin, ch14.18/SP2/0) in combination with GM-CSF and IL-2 is not recommended for use on the NHS in England and Wales as it does not represent a cost-effective use of resources.  Nick Bird (dad to

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A way to target the Achilles heel of neuroblastoma

Some interesting research coming out of Australia at present. Read more here.    

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Statement on NICE Interim Unituxin Decision

As you may have heard, last week the National Institute for Health and Care Excellence (NICE) released a statement to say they are considering not approving the drug Unituxin (dinutuximab) for high-risk neuroblastoma patients, under the European Medicines Agency (EMA) marketing authorisation granted in August. There are a number of factors contributing to the point

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FDA Approval for Neuroblastoma Antibody

The antibody used in an American immunotherapy trial has become the first drug ever to gain approval for use specifically in neuroblastoma. The antibody, called Unituxin, is only the third drug ever approved for childhood cancer. Approval from the US Food and Drug Administration (FDA) means that the antibody can now be made available in

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Can You Cure My Cancer?

Last week a BBC panorama programme was broadcast showing how cutting edge advances made at the Institute of Cancer Research were affecting the treatment of adults and children with very difficult cancers to treat. The programme was moving and insightful and although there were some very difficult passages to watch, there was genuine cause for

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Dr Louis Chesler

Dr. Louis Chesler is a Reader in Paediatric Solid Tumour Biology and Therapeutics at the Institute of Cancer Research and has been acting as the NCCA UK Scientific Advisor for the last six months. It is important to us to have someone like Dr. Chesler available to help us understand some of the more complex

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CNCF joins the research collaborative

INBRACED (International Neuroblastoma Research and Collaboration for Effective Delivery) is very pleased to announce that American charity CNCF (Children’s Neuroblastoma Cancer Foundation) has joined the research collaborative. We are looking forward to working closely with CNCF’s president Patricia Tallungan, a long standing friend of the NCCA UK. Pat helped us introduce annual parent education conferences

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Research

Through INBRACED, NCCA UK is continuing to work internationally with neuroblastoma experts, specialist centres and other charities to deliver clinical trials across borders. In February 2014, the NCCA UK chaired a meeting of the top British minds in neuroblastoma, whilst international experts phoned in. The focus of the meeting was to move some promising pre-clinical

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