Milo’s story
At age four Milo was unexpectedly diagnosed with stage 4 high-risk neuroblastoma. At diagnosis, doctors discovered a tumour in his stomach and cancer in 95% of his bone marrow with ‘innumerable’ spread throughout his entire little body. This included his liver, lymph nodes, spine, pelvis, legs, and arms which was causing excruciating pain for Milo.
“In March 2021 our family’s world suddenly changed forever. A flood of disbelief and fear hit me so hard, yet I could not move or breath in those moments. Words do not do justice to explaining such shock and devastation as I gazed at my child and felt so scared and lost as he looked up innocently and simply said ‘does this mean I’m ok Mummy, are we going home now?”. Milo’s mum, Becky.
Milo’s treatment was intense and gruelling and included induction chemotherapy, surgeries, high-dose chemotherapy, stem cell transplant, radiotherapy, and immunotherapy. In August 2022, at the end of frontline treatment, scans showed that Milo had ‘no evidence of disease’ and his body was finally clear of disease.
No Evidence of Disease marks the end of NHS treatment and as such the family were able to ring the end of treatment bell. This bell marked a poignant point of reflection for the family and was an opportunity for them to give thanks to the many medical professionals who had been part of their daily lives for so long and helped to save Milo’s life.
“Although we cannot put into words our relief to hear this longed-for news that Milo has no more disease, there remains a sadness over our experiences so far and adaptations to manage the long-term side effects of treatment alongside a deep fear as a family that his awful cancer could return.”
Milo’s parents, Becky and Paul
Milo’s legacy
Funds raised through Milo’s Voice fund with Solving Kids’ Cancer UK will go towards Solving Kids’ Cancer UK’s four key charitable activities; funding research; providing education, advocacy, support; providing pastoral funds to families we support and supporting those fundraising for access to treatment.
Milo has a loving family and two sisters he adores; his neuroblastoma diagnosis impacted the entire family. Milo’s family continues to pause, reflect, and try to heal emotionally from the journey they have been through and adjust to the ‘what if’ life ahead of them.
“Milo is an inspiration to so many, and was throughout his treatment, so we want his experiences to count and help other families by raising funds and awareness of the physical and psychological impact of cancer as well. Milo is one voice amongst many, let’s make it count!".
Milo’s parents, Becky and Paul
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Terms and conditions
Funds raised through the Milo's Voice Fund are designated to the areas of spend chosen by the family and are currently designated to the funding of research grants, research-related activities of the charity in accordance with Association of Medical Research Charities (AMRC) guidelines; providing education, advocacy and support; providing pastoral funds to families we support and supporting those fundraising for access to treatment.
Donations and comments
Life Services Ltd£340.00
Donated on: 26th April 2024