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Neuroblastoma Parent Education Conference

The annual Solving Kids’ Cancer Neuroblastoma Parent Education Conference provides a unique platform for parents and guardians of children affected by high-risk neuroblastoma and other individuals working in the neuroblastoma field to learn about some of the most innovative and up-to-date neuroblastoma research and treatments.

This year we are also delighted to offer a concurrent session to the main conference programme, which will focus on ways to deal with and manage the long-term side effects of this disease and its treatment.

The Conference’s main aims are to:

  • Equip parents and guardians with vital information to help make decisions about their child’s treatment path
  • Provide information to healthcare professionals relevant to their patients
  • Arm other individuals working to benefit children and families with information to support their efforts

It’s also an opportunity for delegates to meet and socialise with each other and the Solving Kids’ Cancer team. Family delegates get the opportunity to spend time with other families affected by neuroblastoma and professional delegates to network with their peers and international counterparts.

Where and when?

Our 7th Neuroblastoma Parent Education Conference takes place from 2 – 4 November 2018, at De Vere Latimer Estate, Buckinghamshire.

The agenda

The Conference features presentations on a variety of topics intended to provide delegates with vital information on some of the latest research and treatments.

Once again we are pleased to welcome experts from across the UK, Europe and the US, to share with us their extensive knowledge of high-risk neuroblastoma, and of coping with the impact of a childhood cancer diagnosis.

Many are researchers who are seeking the discovery of more effective and targeted treatments for high-risk neuroblastoma, who will share their current work and future plans with us. Others have key insights to share that may help you to understand the nature and biology of this disease, and also to help deal with the psychosocial impact of such a devastating diagnosis on the family unit.

We’ll also hear from parents who have lived through this experience with their own child and deliver a concurrent session to the main conference programme, which will focus on ways to deal with and manage the long-term side effects of this disease and its treatment. This session will be parent-led and facilitated by long-term follow-up specialists and is aimed at parents of children who are 2+ years post-treatment and remain in remission.

The agenda (subject to change):

Patients Included

Our conference has ‘Patients Included’ status, demonstrating our commitment to ensuring it delivers research and clinical information that is important to parents and guardians of children with neuroblastoma. You can read how we meet the requirements.

Information for delegates

We invite two adults per family to register their interest for the conference weekend to give as many families as possible the opportunity to attend. Families can register the interest of additional family members, whose attendance would be subject to availability nearer the time.

Solving Kids’ Cancer provides the conference weekend free to parents and guardians and offer travel grants to ensure that travel expenses do not prohibit attendance, in line with our travel policy.

We also invite healthcare professionals to register their interest for the conference. An attendance fee may be required of up to £150 (£100 for Saturday and £50 for Sunday) and someone from Solving Kids’ Cancer will be in contact to arrange payment by the 5 October 2018.

All those who register their interest will be contacted by 5 October to confirm their place(s).

Children are invited to attend the conference weekend and professional childcare is available throughout the conference programme. On Saturday night, parents and guardians, speakers and facilitators are invited to attend a Gala Dinner – an opportunity for everyone to get together in an informal and friendly setting to meet, connect and share experiences.

Should demand exceed availability, priority will be given to families who reside in the UK and Ireland who are seeking information to help their child or other children.

Late registration information for delegates

Registration has closed for this year’s conference. Thank you for your interest, you can still join the waiting list to attend as an overnight delegate – should we have any cancellations, you will be informed as soon as possible. We also still have a limited number of day delegate openings left.

To register as a day delegate or join the waiting list as an overnight delegate, please contact michelle@solvingkidscancer.org.uk 

History of our conference

The conference is entering its 7th year and has been constantly growing since its inception. It began as a one-day meeting and has since evolved into a 2-day conference weekend to give families the time to gather as much information as possible and spend time with others going through the same journey. For more information on conferences in previous years and to watch some fantastic presentations, click through below:

2012
2013
2014
2015
2016
2017

Contact

If you have any queries regarding the Neuroblastoma Parent Education Conference please don’t hesitate to contact Leona@solvingkidscancer.org.uk.

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Solving Kids' Cancer

Tel: 020 7284 0800

CAN Mezzanine
49-51 East Road
London
N1 6AH

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