At Solving Kids’ Cancer we value our supporters and the families we seek to help and as such, take your privacy seriously. We are committed to treating your personal information with great care, and so ensure that it is protected using secure systems and processes. We are also committed to being transparent about what we do with your information. This policy sets out the following:
There are a variety of ways in which we may collect your personal information:
This may be through one of the following ways:
- Making an online enquiry;
- Requesting support for your family;
- Requesting our newsletters and updates;
- Telling us your story;
- Signing up to a third-party event for us;
- Registering to attend our neuroblastoma parent education conference;
- Making a donation;
- Making a purchase from our shop;
- Fundraising on our behalf;
- Applying for a job or volunteering opportunity.
This may include:
- Independent event organisers like Charity Challenges;
- Fundraising sites like Just Giving or Virgin Money Giving;
These independent third parties will only do so when Solving Kids’ Cancer is identified as the recipient of this information.
We may identify and collect contact details for individuals based within organisations (e.g. schools, universities, sports clubs and other groups), to promote specific fundraising events, activities or initiatives. We use the charity’s legitimate interests to collect this information. We will inform you that we are holding your information at the earliest opportunity and will honour any request to stop processing this information.
When you interact with us, we routinely ask you to provide your name and contact details, such as your address, phone number and email address. Where appropriate, we may also request your credit/debit card or bank details; health and personal information relating to your child, or information relating to your personal circumstances and/or requirements; your date of birth; and gender.
Due to the nature of our work, we hold information you provide to us about your child and sensitive details relating to their medical condition(s). This information is used to ensure we can most effectively provide support to your family.
We will only hold this information with your express permission. This information is stored securely with restricted access and handled with the greatest respect for privacy.
How we use your information largely depends on why you are providing it. We may use your information to:
- Carry out internal administration;
- Provide and personalise support to fundraisers;
- Provide information about our work and services;
- Keep a record or your relationship with us;
- Update you about the charity’s work and impact;
We want to keep in touch with you to update you on how your generous support is making a difference to children and families affected by neuroblastoma. Our communications can include information about the following:
- Our support to children and families affected by neuroblastoma;
- How we are funding and shaping ground-breaking neuroblastoma research;
- Our work to give children a voice on key issues that affect them;
- Our fundraising events and initiatives;
- Our children’s campaigns and their progress.
We will only send these communications to you by email where you have provided your consent for us to do so, or where you have been regularly receiving these.
Please be assured that we will never share your information with another organisation for their own marketing purposes.
How to stop receiving our updates: If at any point you wish to stop receiving updates from us, you can use the unsubscribe mechanism on emails received or you can contact us via email at firstname.lastname@example.org, via post at Solving Kids’ Cancer, CAN Mezzanine, 49-51 East Road, London, N1 6AH, or via telephone on 0207 284 0800.
- Process and handle purchases via our website shop;
- Process donations;
- Comply with financial regulations and the law;
- Target communications;
We may share information relating to a child and their family, including a child’s medical information, to facilitate access to treatment or to engage organisations that we work in partnership with to provide supplementary support to families. We will always ask for express permission to do this. This may include hospitals, clinics, travel agencies, charities and other organisations. Some of the organisations we routinely work with include:
- Memorial Sloan Kettering Cancer Center
- Helen DeVos Children’s Hospital
- St. George’s Society of New York
- Macmillan Cancer Support
- Child Bereavement UK
- Harley Street Clinic
Where these organisations are based outside the European Economic Area we have appropriate measures in place to ensure this information is transferred securely. Where organisations are based in the US and have not signed up to the Privacy Shield, we note that their Privacy Policies, which are available through their websites, look to embrace the principles of the General Data Protection Regulation to protect your data.
Where you have signed up to take part in an event for us, for example, the Royal Parks Half Marathon, we will share your information with the event provider that is necessary to facilitate your registration.
In other circumstances we will only disclose personal information if required by law.
The personal information you provide to us is stored on our secure electronic systems within the UK. Some information may be stored in paper files, which are held securely in our London office.
We engage service providers to work on our behalf, who will only have access to the specific information they need to undertake the service requested. Where these service providers may be based outside the European Economic Area, we have appropriate agreements in place.
We rely on the following lawful bases for processing personal data (as set out in Article 6 of the EU General Data Protection Regulation).
We hold and use your personal data where you have provided your consent for us to do so. For example, where you have consented to us holding information relating to your child’s medical condition(s) or where you have agreed to us sending you email updates about our work. You have the right to withdraw this consent at any time, and we will always honour this.
We hold and use your personal information where we have an agreement with you, for example where you have: requested our support to access treatment for your child; made a donation; signed up to take part in a fundraising activity or event; or registered to attend our neuroblastoma parent education conference.
We hold and use your information when we are legally required to do so, such as for Gift Aid declarations and records.
We hold and use your information based on our legitimate interests to, for example: conduct valuable analysis and research to determine our performance and inform our service development; to contact individuals in their business capacity who may be interested in a specific fundraising initiative or event; and to target our communications. Where we rely on our legitimate interests we conduct an assessment to ensure our interests are not overridden by your privacy rights and freedoms. You have a right to object to processing under such grounds.
You have the right to request a copy of the personal information we hold about you. This is known as a Subject Access Request. We may request proof of your identity (to ensure we do not inadvertently pass personal information to a third party). We will endeavour to respond to your request as soon as possible and no later than within one month.
If you believe any of the personal information we hold on you may be incorrect, or you wish information to be deleted from our systems please let us know.
You can exercise any of the above rights by contacting us via email at email@example.com, via post at Solving Kids’ Cancer, CAN Mezzanine, 49-51 East Road, London, N1 6AH, or on 0207 284 0800.
If you are not satisfied with the manner in which we have handled your personal information, you have the right to complain to a statutory authority. In the UK this is the Information Commissioner’s Office.
Our website may contain links to other websites. We are not responsible for the content of these websites and if you follow links to other sites, any information you are provided there will be subject to the privacy policies of those particular sites.
From time to time we may make changes to this policy. We will always indicate the date the latest policy was published. If any significant changes are made to how we use your personal information we will endeavour to notify you.
We endeavour at all times to comply with all relevant data protection legislation. If you have any queries about data protection and/or this policy, please contact us at firstname.lastname@example.org or on 0207 284 0800.
This Policy was last updated in July 2018.